I wanted to pop on the blog today to give you guys an update. I’m working on making some changes to the blog and how it’s run and since this year has already been rough with the number of posts and the rebrand, now seemed like the time to do it. I won’t give all the details yet, but some cool things are coming. Just hold tight as we get things going.
I have been applying for disability benefits since May of last year when my short-term disability from my job ran out. Throughout this process, I’ve also been working on building a business around my writing, as it’s been a lifelong dream to publish books. This has created a lot of interesting aspects in my life that many disabled people don’t face. However, the restrictions on disability benefits in the US clarify that if you want to lead a good life, you want as many options as you can get. I wanted to share my experiences with the process as I got my disability hearing date earlier this week and I wanted to give hope to others who are dealing with the process along with shedding some light on how the process and limits are harmful and need change.
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This week I have been struggling with what I suspect is bronchitis. With my normal energy being more limited, I’ve been struggling to get myself to write the blog post I was hoping to write this week. So instead I am spending some time sharing what some of my bad days look like. Having more bad days than good days lately, I feel like I’m able to share the reality of my struggles.
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Living with a disability that involves possible seizures, paralysis, and tremors forced me to become conscientious about the records I keep as figuring out my triggers, keeping track of my medication, and keeping track of my seizures have required me to spend a lot of time keeping good records. Through spending a lot of time on YouTube, exploring the bullet journal community, and reading many books over the past year have led me to use my current planner system. Living with ADHD, I find I need to change it up every few months. Today, I want to share with you how I use my planner (which you can check out here) to make my life easier while still keeping track of all the aspects of my health that help me be able to do more with my life.
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After spending a whole post about how it’s okay to label yourself as disabled, I feel like it’s only fair to give you a glimpse into my life as a disabled writer. This week, I’m going to give you a glimpse into how a typical day goes and ways I’m working to protect my health every day. I want to do this to show the power that allowing yourself to identify as disabled can have and to help others who live with disabilities feel less alone in measures they need to take to take care of themselves.
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